[Update] Everything is good so far!

For those who want the tl;dr version, please see the title. Everyone else, please continue reading.

Yesterday was the one month post-op check up. I won’t go into the long ass wait, because it really was a long ass wait (the neuro-specialist was called away for an emergency surgery), but the long of the short (so far) is that I am okay, and doing great so far.

There were a few concerns I had to ask him about though. I was told  that I may experience blurry vision for about a year. That’s all fine and good, but I expected it to mean that, when my eye opened up finally, that it would start off as blurry, and get better in time. Instead, one day, my vision will be fine, and the next, it isn’t. One minute, my vision is fine, and the next it isn’t. Hell, my vision has gone in and out about 3 times while I was typing this. I wouldn’t care so much, since I know it’s supposed to be temporary, but I have classes and work, and I need to be able to read for both of those. So yeah. it’s annoying.

The other issue I was worried about is because the eye they operated on is not tearing up the way it should. I went to watch “Wonder Woman” for my niece’s birthday, and during the sad scenes…only one eye cried. It was a very weird experience. It did it again when we went and watched Despicable Me 3 (though, fortunately, not as many sad scenes).

So I talked it over with the doctor, and he thinks it’s because of the gland they operated on. The lacrimal gland is the tear gland. He says that the gland creates a film of moisture over the eye that helps it to move easily within the orbit, and to see. According to the notes from the surgery, there wasn’t any damage to the gland, but it could be not working right yet because of the trauma around it. So, basically, the gland is either creating a thicker than usual film over the eye, or it’s not creating enough of a film. Either way, I have eye drops to try and help it out. We won’t know if it’s a permanent thing or not for a while.

Other than that, the doc says I’m healing great, and my next appointment will be in about three months.

Next update: holy world building, Batman! I’m in love *_*

I made it!

Sorry for the lateness, everyone, but I. Am. Back!

So, went in for surgery on Wednesday morning. Got there at 8:30am like they told me to, and then I ended up waiting almost two hours before they even took me into the back. If I had known I’d be waiting that long, I would’ve brought a book or something, but ugh. Anyway. Got to my prep/recovery room, and they came in with the IV.

Yeah, I noped the fuck out again. I warned them, the doctor warned them, and the head anesthesiologist even had a note in there to sedate me first, but noooo. They didn’t want to do that. They ended up calling the doctor who would be overseeing my anesthesia, and he came in to talk to me. He said as long as I signed the paper saying that I understood that there was a higher risk with gas induction,  they would do it my way. I had my hands out for the paper before he even finished talking. Obviously he couldn’t just let me grab and sign, he was a good doctor, but dammit I tried.

Anyway, apparently part of why they prefer starting the IV first is because some people freak out when they get to the OR. They see all the tools and stuff and get scared. I told them “I’m a writer, and this -hopefully- the only time I will be in an operating room. I’m not going to freak out. If anything, you’re going to have to gas me just to get me to stop asking questions.”

They got a good laugh out of that, and then they wheeled me in. I tried to get them to speed up, but the one guy said he was too old to be running through the hospital, dammit.

Then it was go time. I just want to say this: I LOVED my anesthesiologists. I had asked them to wait until I was completely out before they started the IV. When they started the gas, I saw him step forward, and I put my hand up and said “Not yet.” around the mask thing.

Guys, he listened.

I was expecting to have to fight with them the whole time, but they worked with me. Seriously, if you ever find yourself having surgery at John Peter Smith in Fort Worth, Texas, and you’re nervous: ask for Dr. Davenport and Nurse Gwen. I don’t know if they only work with the eye surgeons or what, but they are amazing.

Obviously I don’t remember the surgery. I woke up because someone was telling me “time to wake up!” I do distinctly remember telling them “no.” They tried again, and I told them, again: “NO!” Then I started asking for Kristy (roommate/adopted sister). She came in, and got to witness me almost deck one of my doctors (in my defense: the doctor was prying open the eye they had just operated on, I mean…c’mon!). I got distracted from swinging at the doctor though, because when she pried open the eye, I realized I could see.

One of the risks of the surgery was the loss of vision, so I was distracted enough for her to finish torturing examining me.

I made one of the nurses nervous, supposedly. I told them I wanted the lump they removed. I believe my exact words were “I want to put it in a jar in my room and name it ‘Fred’.” The nurse tried telling Kristy “Oh, that’s just the drugs talking.” But Kristy corrected her. “No, this is normal. If it were the drugs, she would’ve came up with a more creative name.” Kristy said the nurse gave her a weird look and left very soon afterwards. (On a side note, I meant to name it “George” like in the old cartoons. “I will hug it and squeeze it and love it all to pieces!” but “Squishy” was also in my list of names.)

Getting home from surgery was the worst part. Both of my eyes were swollen shut, so I couldn’t see anything. Plus, anytime I stood up, I was nauseous. So there was a lot of laying down going on there. My mom arrived around 7pm that night, and I’m not even going to lie, I cried like a baby. I really really did not like being blind.

My “bad” eye (the one I’m mostly blind in) finally opened really late that night/early the next morning, so that helped. My niece was amazing while I was recovering though. She brought me drinks, helped bring me food. Took care of our cat, and the dog. Just…all of it. She was very helpful, and I am very proud of her.

My other eye didn’t open for about three or four days, so my “bad eye” was pulling some major double duty. I ended up with headaches from eye strain and too much light. The doctors only prescribed Tylenol 3, one pill every four hours, but it was just not cutting it, so I called a nurse and asked if I could take two instead. She was worried I would run out too soon (and I did), but ugh. It was worth it. By the time I did run out, it was time to go back and have the stitches removed.

The only thing I will say about the stitches is that it SUCKED. It felt like she was cutting ME instead of the wires/threads.

Now, about the tumor:

I FINALLY found the name of it. It was a pleomorphic adenoma of the lacrimal gland. It can be dangerous, but usually only if 1. The whole thing is not removed, and 2. If the capsule around it breaks. Both of those can lead to the tumor becoming malignant and very aggressive. Dr. Itani was able to fully remove the tumor, and it was in one piece (no breakage of the capsule). So as far as we are aware of at this moment: the tumor was benign.

I still have to be monitored for regrowth, because that is where the real danger begins, but other than that, I am safe and in the clear. My next appointment isn’t until August.

Both of my eyes are open now (my left eye is still a little swollen and bruised, but it’s open), and I am celebrating. Wednesday is my niece’s birthday, so we’re going to go watch Wonder Woman, and tomorrow…tomorrow, I update Zombies!

…and do a crap load of homework. *sigh*

No zombie update today.

So, there isn’t update on zombies today, but that’s because I have a different kind of update instead.

SURGERY!

Called the hospital today to make sure the surgery would still be happening on Wednesday. It took a while for her to get back to me, but YES. Finally. I find out what time they’ll be doing it tomorrow sometime between 3-6 PM.

Now, this also means that there will probably not be an update for S’N’TZ on this coming Monday either. It will depend on if my eye is still all swollen shut and everything.

Fingers crossed for me guys.  First time ever having surgery, not quite sure what to expect.

Update on…well, everything?

Okay, so if you’ve been keeping up, you know that I was scheduled for surgery on May 17th, but I was sick, so it got pushed back to June 7th. I was still sick on June 1st, so I called the doctor, and they pushed it back some more, and set me up with a doctor’s appointment to find out why I’m still sick.

I ended up going to Urgent Care instead, and hey guess what? Bronchitis. And pink eye, somehow (still trying to figure out how that happened…) So I am on a shitload of medicine to get rid of it, and hopefully, I will be fully recovered in time for surgery on June 21st.

Oh yeah, and the kids being sick? Well, it spread to the parents, so now we have a household of sick people. And it’s all bronchitis. Yay for us! Ugh.

In other news, I bought a bunch of random stuff that made me happy, and I am so far behind on homework it’s sad. June is being a royal pain in the ass, people. It needs to get its shit together, and soon.

Also, sorry about “Say ‘No’ to Zombies,” but it will be updated on Monday!

A series of disappointments…

It’s been a shitty week.

First, my surgery was pushed back two weeks because of this damn cold I managed to pick up somewhere.

Then, my mom was supposed to come visit, but that fell through. She’s still planning on visiting, but I don’t know when that’s going to happen.

Then the kids both ended up sick, and some news we were expecting never came in. So we’re still waiting on that. I messed up an assignment because of the rigamaroll that was going on with mom’s travel plans, and just. Ugh. It’s been a mess.

Pretty much the only good thing so far was going to see Guardians of the Galaxy 2, and even that was a bit blah, because really, Marvel? REALLY?! That was a dick move.

Oh yeah, and The Sims: Parenthood. But overall, this week is blah. And I am so done with it. Three weeks of coughing, people. It’s been THREE weeks!

The surgery was postponed til June 7th, but since I am still coughing, I’m not sure what they’re going to do. This is driving me insane. I want it done and over with, dammit!

Ugh, oh yeah, AND I forgot to update “Say ‘No’ to Zombies.” Sorry about that guys. I might update on Saturday, and then on Monday. We’ll have to see. I’m trying to make sure I stay a couple chapters ahead, but I’ve been so busy with school and work and games, I think I might be a little behind.

Oops?

Eye see what you did there…

Sorry for the lack of update yesterday. The past two days have been very busy for me.

So, went in for my appointment with the doctor on Wednesday to discuss the MRI results. That was fun. I got to harass Mr. Villian Voice, and watch a standoff between a patient and one of the nurses.

Apparently he thought he was there for surgery, but it was just a checkup. He made the mistake of getting beligerant with the head nurse. She shut him down quick. “I am the RN team leader here, and you need to speak to me with respect.”

He left in a huff, but that’s what you get for being pissy with a nurse.

Anyway, they called me in, we all looked at the MRI. I saw my brain on a screen and completely geeked out on the poor doctor. He was laughing at me, but I don’t care. I told him “it looks all wrinkly.”
him: No, it looks normal.
me: I’m pretty sure that’s the only time that word has ever been used to describe my brain.

Entertained the nurse who was trying to take a picture of my eye. The camera was on, but she wasn’t looking at me, so I started dancing around. She happened to look up at the screen, “are you playing with my camera?” Busted~ She walked by me about an hour later, just shaking her head. “Girl, you crazy.” That woman has no idea, rofl.

So, onto the tumor:

So far, everything looks somewhat good. The main doctor said that he think it’s either one certain kind of tumor, or another (there’s a bunch of different kinds).  One is really really bad, the other is somewhat okay. Because there is a distinct lack of pain, he believes the tumor to be the “okay” one.

That doesn’t mean that I am safe, but it’s still good news.

Surgery has been scheduled for Wednesday, but I won’t know what time until the day before. I’ve been told to expect the whole thing to take about 6 hours, but depending on how it goes, I might end up staying overnight. I’ve had to arrange for time off from work and school both, since I’ll be out of it on pain meds for the first couple days, and my eye will be swollen shut. It wouldn’t be so bad, but since I’m functionally blind in my right eye, and this surgery is being done on my left eye….yeah. Ugh.

I spent just about all day yesterday on the phone with school, financial aid services for the surgery (I was approved, yay!), and the hospital in general (all while doing homework assignments that were due THAT DAY. Fun times. Just….So. Much. Fun.). I had an appointment today for the pre-op anaesthetic testing. I thought there was going to be a bunch of tests, but it was just an interview.

My family should be heading out this way on Tuesday, so they’ll be here for the surgery. I guess they’re going to try and help out with the kids while I’m recovering. The manager at the gas station job told me that I am not allowed to come back to work until the doctor says it’s okay. The doctor said I’ll need about 10 days, and warned me that I’ll be bruised from forehead down to my neck/chest area, so if I didn’t want people to see me all messed up, I would need to make arrangements. I don’t care if people see. If they have a problem with the way I look, that’s their problem. The hell if I’m letting them try to make it mine.

All that being said, I will update “Say ‘No’ to Zombies” on Monday, but I’m not sure about the following week. It will depend on how the surgery goes. Some of the risks of the surgery include double vision or loss of vision for the rest of my life and/or the eye, itself. The doctor said he hasn’t had anyone lose an eye yet, and he believes that I won’t have any issues, but he had to tell me about them, for just in case.

Fingers crossed, people. If I lose the ability to read, I will lose my fucking mind.

Yuck. Another eye update.

Okay, so yesterday was my follow-up appointment about the mass behind my eye.

Apparently it is a tumor of some kind. They don’t know if it’s cancerous or not, and because of that, they can’t do a biopsy while it is still inside me. They have to remove it. So…surgery. For sure. Yay. /sarcasm.

No news yet on when the surgery will be. They had to send me in for an MRI to get a better look at the tumor first (Pro tip: Do not wear your hair in a ponytail when you are getting an MRI. By the time they were done, it felt like I had been stabbed in the back of the head). I have been warned that it may be a complicated surgery, depending on if the tumor has attached itself to bone and/or tissue. They have to make sure to get all of the tumor out, because if they don’t, and it turns out that it is cancerous, it can come back as very malignant and aggressive.

They wanted to send me to Houston for the surgery, but they’re not even sure if the hospital there accepts people without insurance. There’s also the problem that even if they do accept non-insured patients, it would be ass expensive, and I can’t afford it.

I’ve already applied for medicaid and was turned down (I don’t make enough. Not sure how exactly that makes sense, but that’s what it said). I also tried to sign up through the Affordable Healthcare thing, but open enrollment was closed. And now, thanks to Fuckhead in Chief, it’s about to go the way of the dinosaurs anyway. So yeah, I’m screwed seven ways to sunday on that one.

On the plus side, I get to see my mother soon. She’s supposed to come out and visit sometime in the next couple weeks, and possibly my sister as well. Still trying to work that one out. My sister said she will definitely be here for the surgery, but we’re not sure how long the recovery time for it is, so just…ugh. It’s a mess.

I called my mom and my sister both last night to give them the news and to get the freakouts out of the way. It’s seriously not that big of a deal yet, but ahh, family. At least they’re doing the freaking out for me, which means I can concentrate on homework, lol.

Ugh, this surgery better not mess with my GPA.

Never underestimate a reader/writer…

Something I forgot to mention in the last post.

After the CT scan was done, I asked if I could see the images. The tech guy, Keith (I finally remembered his name!), said “sure. You won’t really know what you’re looking at…”

Little did he know, I had to do research on CT scans for part of Etlan. So he pulled up the image, and started going through the different layers.

Me: “Oh, okay,  there’s the nasal cavity, and there’s the eye soc-ohhhh, there’s the mass they were talking about.”
him: *gives me wtf look*
me: I read a lot.
him: What do you read??
me: a little bit of everything.

So yeah. Fun times yesterday. Besides the freakout, anyway.